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Old 06-01-2007, 02:28 PM
Jerri in Boston Jerri in Boston is offline
Junior Member
 
Join Date: Dec 2006
Posts: 15
15 yr Member
Jerri in Boston Jerri in Boston is offline
Junior Member
 
Join Date: Dec 2006
Posts: 15
15 yr Member
Default Been there...done it (unfortunately)

My husband had the same thing done in May at Beth Israel here in Boston. They started weaning him off his meds (tegretol, lamictal and keppra) on the 7th and the 11th he had 6 horrific grand mal seizures.

He too had a sitter. Most days it was someone new. There was a young woman named Suzie that was terrific!

Honestly, it was the worst thing witnessing his seizures on the 11th. I'm still so shaken up by them. I am in therapy from it - call me dramatic, but it really scared me!

They were unable to pinpoint the start of his seizures. They said basically his brain exploded with the seizure instead of the seizure spreading over the brain.

On the 12th they introduced his meds back (slowly) and it was like night and day! They replaced his keppra with lyrica. So far, so good. He has gained weight on lyrica (side effect) but he's watching his carb intake (which is good anyways). My husband has never had a belly in his life and now he looks odd with a small belly.
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