Thank you so much MrsD, I was certainly hoping for a reply from you
I have had all the recommended vaccines, including annual flu vaccines.
Somehow stress triggered this, at least triggered the severity. I was researching TOS and started noticing the tingly feet. That sent me spiraling into an internet fueled panic that I was dying of ALS, had MS, etc. The more I read and stressed, the worse my symptoms got. That had me thinking maybe it's just "all in my head" but I can say with confidence now that while stress makes it worse, it is very real.
I think my rheum ran the MTHFR, and said it was normal but I haven't been back to get print outs to verify.
So you suggest a methylfolate and methyl b12?
Do you have dietary suggestions? I'm thinking of autoimmune paleo, which is no grains, seeds, nuts, nightshades, sugar.
I get a lot of good fat (coconut oil, EVOO, avocado, fatty fish once or twice a week).
My head is swimming from all the info on candida, toxins, lyme disease in spite of negative tests (I have had tick bites), histamine intolerance, autoimmune disease with negative bloodwork, etc.