View Single Post
Old 06-24-2014, 10:05 PM
jenng jenng is offline
Member
 
Join Date: May 2013
Posts: 135
10 yr Member
jenng jenng is offline
Member
 
Join Date: May 2013
Posts: 135
10 yr Member
Default

So sorry to hear of your daughter's trouble at such a young age. A second opinion is certainly in order. I have no specific recommendation, except to say look at teaching hospitals in larger cities. Often it is mostly covered by insurance if you have a referral, which doesn't have to come from the current neurologist--her primary care doc could make it.

It would be strange to diagnose someone with CIDP, then say IVIG wouldn't be a treatment for her. Often these neurologic issues take more than one doc, and trial & error for treatments, if her bloodwork was inconclusive. This is a great site for information.

Also, if an inflammatory condition is suspected, she should also be under the care of a rheumatologist. Again, a teaching hospital will have the most current and assertive approach. Ideally, both specialists are at the same facility and are communicating with each other.
__________________
Idiopathic Sensorimotor Polyneuropathy
Atypical Migraine
Chiari 1 malformation 7 mm
PLIF L5-S1 Sept. 2013

Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.

Last edited by jenng; 06-24-2014 at 10:15 PM. Reason: add info.
jenng is offline   Reply With QuoteReply With Quote