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Originally Posted by jenng
So sorry to hear of your daughter's trouble at such a young age. A second opinion is certainly in order. I have no specific recommendation, except to say look at teaching hospitals in larger cities. Often it is mostly covered by insurance if you have a referral, which doesn't have to come from the current neurologist--her primary care doc could make it.
It would be strange to diagnose someone with CIDP, then say IVIG wouldn't be a treatment for her. Often these neurologic issues take more than one doc, and trial & error for treatments, if her bloodwork was inconclusive. This is a great site for information.
Also, if an inflammatory condition is suspected, she should also be under the care of a rheumatologist. Again, a teaching hospital will have the most current and assertive approach. Ideally, both specialists are at the same facility and are communicating with each other.
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We will have to look outside of where she is going to school for a second opinion. All of the neuros on our insurance are in the same practice. If I take her out of town and the new doc orders IVIG, I'm concerned that we would have to keep going out of town for treatment. It would be so much easier to be able to have it done at home.
You mention inflammation. Are you referring to her joints? I never thought of a rheumy before. I will look into that as well.
Thank you all again. I have started looking around for a second opinion. She is in an odd part of Texas, nothing is really that close.
Kay