You guys are amazing. I just need to say that.

But in answer to your question it's sort of both cramps and spasms. Charlie horses with involuntary jerks. Now my husband says I do a similar thing when sleeping, from what he's witnessed it's pretty much as soon as I hit REM sleep.

And just before REM and as leaving it, I'll go into what he coins vibrate mode. My pain mgmt doc had a neuro in office for a bit who suggest clozepan(sp?) and at first it helped, I simply vibrated through the night.

Then they had to up the doses, again, and again, until I said no more. It doesn't wake me up, I have no clue that I'm doing it, haven't fallen out of bed, and according to DH I had been doing it for as long as he's known me, which was when I was 14 and sleeping on his couch to watch his kids in the am.

Long story on how we ended up now married

The only difference between reaction after sex and when I'm sleeping is I don't know if it's painful when I'm asleep, and I don't appear to have any difficulty breathing according to DH. As to the painful while sleeping... I once slept through a roommate twice my size jumping on my under filled waterbed while I was sleeping and dosing me with water.

She called my mother whose voice roused me from my sleep, that's when I noticed my nose burning from snorting the water, and bruising to my back, shoulders and a knot on my head, needless to say we had a nice long chat about safe ways to waken an unconscious person, water to the face not being one of them

So pain doesn't really waken me, coughing doesn't, noise doesn't (aside from mother's voice) unless I expect it. If I know I have to get up for an alarm, it goes off and I wake up... If I don't, DH or sometimes my uncle comes into the room to shut it off when they get tired of listening to it. Both of them steer clear of the bed for their own safety though as I'm usually pulling a Linda Blair thrashing around the bed like a demon.

But if I'm on vibrate, they both know they can wake me up safely. But that seems to be the only two related activities. Also if I drink a lot of alcohol, not only do I not have problems after orgasming, but I also don't spaz out while sleeping. Which more than Linda Blair, my husband likens it to someone getting hit by 220, death by electrocution style.

I will certainly talk to the neuro about it though, since pain mgmt hit a dead end, and failing that I might try a psychiatrist. I dunno though, cause while in this regard I may not be crazy, I know I'm ready for the nut house on soooo many other levels.

Seriously though, I do appreciate all the help, you can't even begin to imagine, or you might know all too well. But these past five years since this has been going on has really been perhaps one of the most depressing things I've faced, more so because the docs weren't taking it 'seriously' I guess is a term for it.

I mean I would love to run again, go hiking, playing my clarinet, scrub my kitchen from top to bottom (dear god how it needs it too) but I can view most of that pragmatically and I times I do feel a bit ridiculous that sex is the deal breaker. Sure you can take my pride, my freedom, my independence but give me orgasm or give me death....

Sorry it's late here, and the zanaflex is giving me the giggles tonight.

More inclined to go to psychiatrist than ob just because I had bad experience with both female and male obs, was young, had my first insurance figured be healthy... Go to the gyno, never too early... Yeast infection, menstral cramps, terrible PMS, yeast infection, yeast infection, bladder infection, another yeast infection....later, said forget this, ate plenty of yogurt, drank cranberry juice and finished of the antibiotics never to darken an ob/gyn's door again. PMS gone, cramps gone, regular periods back like clockwork never had another yeast infection or bladder infection again. So longs as they remain unbroken, I'm not going to have them broken, some things were not meant to be placed in the human body... Their tools seem to be one of them.