Quote:
Originally Posted by Jo*mar
Do you feel the CIDP is a correct diagnosis? I there a definitive test for that?
I am curious since you mention most issues are in her hands.. and was wondering if all types of repetitive strain have been ruled out?
Specifically Thoracic outlet syndrome..
I suppose it could be possible to have both the CIDP and some sort of RSI ...
Can you describe the symptoms she has with her hands?
Any neck/shoulder tension, or forward head posture?
|
I honestly do not know if this is the correct diagnosis. From the EMG/NCS test of her arms, this is the summary:
1. Electrodianostic evidence of a moderate median neuropathy at the
wrist. This is conistant with with a clinical diagnosis of carpal tunnel
syndrome.
2. Electrodiagnostic evidence of peripheral polyneuropathy affecting both
sensory fiber involving bilateral upper extremities. Ployneuropathy also
affecting bilateral sural sensory fibers.
3. No electrodiagnostic evidence of left or right ulnar motor neuropathy.
A week or so later, she had her legs tested. They were not nearly as severe as her arms. I do not have those results. I also have not seen the results of the MRI or LP.
Her symptoms in her hands, are pain, weakness, unable to grip items (drops them), feeling of needles being inserted under her finger nails. Her hands are mostly cold and fingers often numb. Just recently she has the sensation of ants trying to crawl out through her feet. She is also very fatigued and seldom feels well.
The doctor verbally told is it was CIDP. He referred to it as a demylinating disease. He said that he felt that the myelin sheath would regenerate. I wanted so much to believe him.
I know now that whatever is going on is not getting better on it's own.
I need to get her help soon.
Kay