If you would like to read about TOS and chronic RSI's, just for your own knowledge base.. here is the link to our TOS forum, be sure to check out the sticky threads , you might find something that helps with her dx.

I hope the drs aren't focusing on any single dx, and possibly missing secondary conditions...

I don't know if any expert PT has been tried yet?
Often advanced PT's can do a more thorough evaluation than a dr that does not do any "hands on" assessment.
Especially if there is possible posture or repetitive strain issues.
I would try it at least to find out if some of the symptoms can be resolved..