Ok, you guys are very knowledgeable, so I have a mystery for you: I have been a mystery with myasthenic like symptoms for over 3 years now.. getting IVIG every 3 weeks.. I crashed, couldn't breathe, droopy eyelids the whole nine yards 3 years ago.. IVIG saved me... so LEMS is at the top of their list.. though I have some sensory issues too (confirmed SFN).. I have had strange things happen sometimes, and I think the heat makes it all worse.. but

I get all over muscle weakness, feels like an elephant on my chest, my pulse ox even goes down, heart rate goes up.. I'll get a headache, roaring in my ears(feels like my head is in a bucket), I start feeling disoriented... usually It causes me GI upset as well.. Once I sit down and rest for 15 minutes, the headache, roaring, breathing all of that improves.. though I will remain weaker.. this only happens during exacerbations (the kind that last days).. It's pretty scary and miserable
Thanks for any insight/opinons