Shortness of breath started again on Tuesday and I went to ER. They did the chest scan in ER and it was ok. They shot me full of steroids again and breathing eased. I had all over MG weakness, swallowing, eye shut, could not move legs or arms. They wanted to admit me but had no beds. Neuro does not think it was MG crisis, because My shortness of breath lasted so long without needing the Vent. So she refused IVIG and plasmapharesis. I am back home and the overall MG is worse than before. I found 2 new neuros but can't get an appointment right away. I can't believe the neuros logic. Just hanging out waiting for John Hopkins.

kathie