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Member
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Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
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Member
Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
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I do not like being awake when everyone else is sleeping. Such a lonely time. I also do not like sleeping meds. I went years with my thyroid out of whack before a doctor found it.
My sleep was all over the place. He gave me ambien to get on a schedule. What a trip! That stuff is like a hallucinogenic and I was left with no memories if I 'woke up' on it. Nope, nope, nope.
There may be something else out there better. Don't know. My sleep study came back negative for apnea but I do wake up often when I do fall asleep. If it's not better doc wants me to do sleep therapy.
I am a bit cynical about it though. Aren't most TBI patients sleep off the rails. I don't look forward to more therapy and money if this is what my reality is. Everyone in my support group has sleep issues. Some are 10-12 years out with sleep issues still.
I love nights when I fall asleep around 8-9 and wake up by 7.
Jenna
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*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.
*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.
*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.
*Working on getting to know and accept the new me.
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