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Old 06-30-2014, 07:33 PM
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Living_Dazed Living_Dazed is offline
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Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
Living_Dazed Living_Dazed is offline
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Join Date: Jan 2013
Location: Great Lakes area
Posts: 409
10 yr Member
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Quote:
Originally Posted by Mark in Idaho View Post
I go through similar times of despair. I have to go on minute by minute. I spend time in prayer.

I wish I had more to offer.

Has anybody found any reason for the burning pain when you wake up ? Has anybody even try to diagnose this ?
Yes!!! Mine was the occipital nerves that start in the upper thoracic and run up the neck, back of head, up and to the front!

markneil1212 have you had those nerves burned???? I had very dark thoughts for many months before I had occipital nerve ablation. I lived in bed in the dark with frozen peas, a pillow covering my head and total darkness.

Like Mark said minute by minute, use prayer, reach out here... We can't fix it but we can let you know you are NOT ALONE.

I lost my career as a teacher, my ability to save for the future, to contribute to my family, build the home we planned (accident happened after we sold our house but before building the new one) I can't drive. These catastrophic repercussions are fair on top of our disability.

Please keep reaching out. I wish peace for you.

Jenna
__________________

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*TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015.

*Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory.

*Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living.

*Working on getting to know and accept the new me.
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