Geez, Kathie, I don't even know what to say. Shortness of breath lasted so long? What the . . .? How do they know you didn't have hypoxemia (while awake and sleeping) and didn't need a vent? Their otherworldly psychic ability?

Again, no ABG? No pulmonary tests? No handheld, bedside spirometry even?

Find a pulmonologist. ASAP. I cannot tell you how valuable they are for MGers.

Does the neuro know that there is no way to predict how quickly someone with MG will tank, or how badly?

I might have to write a e-pamphlet about MG, breathing, and ER treatment. I'm really beyond sick of this.

I hope you're taking it easy and will go back in if you need to. I am so sorry you aren't doing well and aren't getting adequate care.


Annie