Elle, Did they do the LEMS blood tests?

If you clench your jaw while sleeping, that can make things worse. You could also use a U-shaped pillow around your neck or a neck brace to help those muscles of the head/neck. The head is really heavy!

Try sipping some cool water in between eating. Or even a cool pack (not too cold) on your neck/jaw.

Don't you "love" having a face that droops? I don't even like going out in public that way.

You take it easy, okay? Don't push yourself.

I hope you will get answers AND treatments soon.

Annie