Last 2 days I have had some improvement. I am able to think about more than getting to bathroom and food to take with meds. The heat is a killer at the moment/ I got a cancellation appointment with one of the neuros, I mentioned. He has numerous MG patients, but not as bad as me. he said my level of MG is beyond his expertise. He suggested a different neuro group, that has a new satellite office just opening at my local hospital. One is a trained neuromuscular specialist. he put a call into him right during the appointment. I am waiting to hear back.

Meanwhile, current neuro tried to taper prednisone on discharge from hospital starting at 80 mg for 1 week and 40 the next. I talked to my primary care and told her I would crash. So I am self medicating at this point. I am still not stable and I will continue the 80 for a couple of weeks and then try 70mg. By that time I should be on my way to John hopkins and let them decide the rest

Annie, How did you make out with the flooding? Is everything OK?

kathie