A D-Dimer might be in order, too. Clots do occur after IVIG, especially for those who have clotting disorders like antiphospholipid antibody syndrome that have gone undiagnosed. APS is quite common. And you already have other AI issues.

And I still think a cardio eval or an ECG are reasonable measures when there is swelling! Don't assume it's the IVIG or breathing issues.

You're very welcome, and I'm grateful I can be of help. Don't forget calcium and vitamin D while on Pred, plus good prostaglandins like flax oil, olive oil, walnuts, etc.

How bad were your PFTs? Were MIP and MEP done? Those are essential to do!

Yes, it's very good that you have doctors working together.

Take it easy!


Annie