Quote:
Originally Posted by AnnieB3
A D-Dimer might be in order, too. Clots do occur after IVIG, especially for those who have clotting disorders like antiphospholipid antibody syndrome that have gone undiagnosed. APS is quite common. And you already have other AI issues.
And I still think a cardio eval or an ECG are reasonable measures when there is swelling! Don't assume it's the IVIG or breathing issues.
You're very welcome, and I'm grateful I can be of help. Don't forget calcium and vitamin D while on Pred, plus good prostaglandins like flax oil, olive oil, walnuts, etc.
How bad were your PFTs? Were MIP and MEP done? Those are essential to do!
Yes, it's very good that you have doctors working together.
Take it easy!
Annie |
Hi, thanks again did not know about adding flax oil or walnuts while on prednisone. I will add flax oil to my green shakes in the morning. Not sure what my numbers were but bad enough for my pulmonary doctor to be very alarmed . He has followed me since 1994. Of course today with the large amounts of prednisone I have zoomed around all day. Sleep is difficult because of being wired from the prednisone. Yes MIPS was done please tell me MEP not sure what that is. You really are so well informed. Still gathering information.
Thanks again!