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Old 07-06-2014, 08:32 PM
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
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Hi guys! Just wanted to update you on this myasthenia gravis stuff. I went a few days ago to a new neuro-ophthalmologist for a second opinion. He was VERY thorough! He thinks that my eye/vision issues are not MG, but actually coming from RSD, which is in that side of my face. I am thankful and hoping that he is correct! He gave me options - 1) try the treatment medication that they normally use for MG to see if it helps the symptoms I am having; 2) have the EMG & SFEMG redone...no thanks! 3) wait and see if it progresses, because if it is MG, it will make itself known. I have been having trouble with choking and swallowing so I am having a scope down my throat this Friday. Been having some bleeding issues also so I am having a colonoscopy Friday (sorry - TMI). Decided not to take those MG meds because of the other issues going on. Dr was pretty sure it is RSD.

I am having a really hard time right now. My RSD is flared so much as is my interstitial cystitis (bladder pain). Today is one of those days that I wonder how much more I can actually take.

Thanks for listening
Nanc
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