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Old 07-06-2014, 10:25 PM
cdwall cdwall is offline
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Join Date: Jan 2014
Location: NC
Posts: 136
10 yr Member
cdwall cdwall is offline
Member
 
Join Date: Jan 2014
Location: NC
Posts: 136
10 yr Member
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Quote:
Originally Posted by Lottie View Post
Thank you for this very interesting update..So, am I correct that you were being treated for osteoporosis related to CRPS? Not treated for CRPS in general?

I had a osteoporosis "specialist" tell me there is no correlation between osteoporosis and CRPS.,.......so much for her!

I wish for you continued improvement. ~lottie
Hi Dottie, Thanks. No, I was being treated for CRPS type 1 in general. I hope it helped the osteoporosis as a side benefit but bisphosphonate infusions are an experimental treatment for CRPS that has shown promise. This is a much higher dose than what would be used to treat osteoporosis. It's a similar protocol to what is used to treat Paget's disease.
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