Phaedra
Thank you much, sweet of you to reply. I seem to have this issue wherever I go, every time, in some form or another. I have seen 3 other surgeons and this team of people were the most in tune with RSD and protocols but not it seems once I wanted things in writing and a real plan, they are getting cold feet. It has been many ups and down getting to this point and I finally felt I made progress on this 20 plus yr journey with RSD and surgery. To my face and in person, people talk as if I will get the care I need/hope for or at least some of it, certainly not all by any means. But once it comes to the real deal, no one wants to really have a plan of attack but me. LOL. GRRRRROWWWL.
Even the top hospitals don't do much for RSD patients around here and I am in a very hospital heavy area with great care a stones throw away, just not if you have RSD. For real. :-) It is the devil and doctors see it as so too unfortunately.
thanks much
Quote:
Originally Posted by Phaedra
I know that I am not of much help. I have no suggestions for you. I do understand how you feel about having to be your own advocate. Are there other doctors that can do the surgery? Do they give you a reason why? I would be searching and asking why they are backing out on there own word. I do hope that you can get the help and care that you need and find someone that will do it your way. Surely there has to be someone that will.
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