Hi everyone,

My journey started about 8 months ago, and has been nothing short of horrible. I know you all can relate.

Anyway, I *finally* went to a vascular dr who is familiar with TOS and he heard a bruit over my L subclavian when I raised my arm, but during the vascular testing, nothing showed up. Ugh. Then, the doc said that ATOS bilateral and nearly impossible w/o extra ribs anyway.

I have the red/splotchy hands, pain in fingers/chest, and lots of pain in my armpits. I was never a baseball player, but all the pain/itching in my armpits makes me think my axillary is somehow involved in all of this. Oh, and I have tons of veins showing up on my shoulders and inner biceps. From what I have read and based on my sx, I think I also have pec minor syndrome...I actually saw 2 breast specialists when this started because the pain seemed to be there, in addition to the other places. Ok anyway.....

I have had extensive blood work done to rule out any inflammatory or rheumatological problems, but I have a lot of other symptoms I can't make sense of, though, other than the typical TOS symptoms (tingling, etc).

This is what I need help with. Are these TOS symptoms???

--pain in jaw while chewing/difficulty swallowing
--pain around/in eyes..sometimes it is a stabbing pain through my eye, and my eyes are SO SO red all the time since this started
--tingling feet and painful toes
--numb legs/arms/neck
--after using my arm a lot I feel nauseous after I eat for a couple days

So, can leg/foot pain be related to TOS? What is the relationship??

What makes my symptoms the worst is pushing a stroller, sitting at a desk/driving.


Thank you for reading. Any help you can give is greatly appreciated.