Hi, Stephanie.
I agree with Kathie, in that you might want to ask for a peripheral blood smear so that they might look at your cells to see what's up.
http://www.ncbi.nlm.nih.gov/pubmed/24016543
http://emedicine.medscape.com/articl...view#aw2aab6b3
Have they ever checked your C-reactive protein?
A hematologist could help to evaluate the situation and reassure you about it. It can be a long-term risk, but is it enough to drop a drug or two? Only your doctors can discuss that!
At least don't stress out about it until you can get it figured out.
Annie