Thank yall so much.. Yes Annie - I have wondered the same thing about channelopathies... but I just don't know which one I would have? I feel like it has to be something like that?! I don't balance much rest into it all.. I am a working mom of two kids under 4... so not a lot of rest goes on... I do well when I have my IVIG Kicked in.. but as soon as it starts to wear off everything becomes more difficulty - chewing, swallowing, walking up stairs.. smiling and breathing etc.. even flexing my abs to go to the bathroom gets difficult.. but thank Goodness for IVIG.. it's my miracle drug!

The ear roaring head pressure/disorientation thing, along with the extreme shakiness during adrenaline/excitement of any sort is baffling to me.. I have thought about vasculitis and channelopathies.. but can't come up with anything that fits.. (I know most people DON"T fit into a nice box however).... sigh!