I haven’t seen my MS doctor in two years. It is mostly because I think it is pointless to complain to a doctor who cannot do much for a Secondary Progressive MS patient.

I was SPMS when I was diagnosed, so I haven’t been through the whole Disease Modifying Drugs challenges so many of you have been through. In fact I’ve never even been on steroids for my worsening symptoms. The only MS-related drug I take is LDN.

In the last two years I’ve lost all but a token amount of my mobility. I can stand for something like three minutes before my posture starts to droop, and I can’t stand any more. My longest walks these days are out to the car, which isn’t more than 30 feet. My walker doesn’t help very much any more.

So I was thinking that I should visit my MS doctor and tell him my long, sad list of symptoms (sniff), and tell him I want an MRI. I want steroids, or anything else he thinks might help

I’ve been a “good sport” about all this MS stuff for a long time. I need some relief!

☺