Quote:
Originally Posted by AnnieB3
It might be time for an internist or some other doctor to consider if something else is contributing to your MG being worse.
How much are you doing every day? 
Are you taking Mestinon? What other drugs? Sometimes when you're on other drugs for MG, Mestinon can be causing you to have too much acetylcholine. But only your neuro and you can figure that out.
I'm very sorry that you aren't getting better. It could just be a matter of it taking longer this time. If I recall, you were pretty bad off, so maybe it will take backing off on activities in order to bounce back.
It's frustrating to be so weak. I hope your docs can figure something out for you!
Annie |
Annie, I have a couple questions about small crisis or bouncing back. I am on the tapering back on prednisone for the respiratory issues I'm having. When I went from 40 to 30 the cough came back now at 15 MG for 3 days etc. basically back like I was. Tried to reach doctor Thursday and Friday with no luck which I will address Monday. His staff is still not communicating to him. When do you know the hospital is where you need to be? Also have you heard of ringing in ears at times while on Mestonin, Mestinon times span and prednisone?
Thanks for any input.