Dave,

Would you also exclude physicians who don't have LEMS, but are experts in LEMS?
Would you exclude nurses as well?
Would you exclude people who have extensive experience with how fluctuations in acetylcholine can adversely affect the body?
Or exclude hematologists/oncologists who don't have LEMS, but deal with the cancer related issues such as small cell lung cancer that come with LEMS?
Or anyone who simply wishes to support patients with LEMS?
Does it exclude anyone with CMS or any other channelopathy?
What about pets with LEMS?

While I do understand your desire to have a group which consists of only LEMS patients, there is much to be learned by a variety of people—even if they don't have LEMS.

I, for one, respect everyone's input here, no matter if they have MG, LEMS, CMS, or have no clue of what is going on with their body. I'm grateful for this forum, and those who moderate it, because everyone is welcomed here.

And how will you determine if someone truly has LEMS? See my point?

It's your choice to do whatever you wish, however, you might lose out on important insight which could help everyone with LEMS.

Good luck with your endeavor.

Annie