Originally Posted by eevo61

In my case,have 4 surgeries after rsd diagnosed, my rsd is on lower limbs and possible arm spreading but not confirmed yet.
The first 3 were to position scs spinal cord stimulator ,trial part, position one time int buttocks but experience technical and personal issues and the third time to repositioned scs battery from buttocks to abdomen, the pre operation consisted in IV with antibiotics to prevent possible infections, zofran for issues with the antibiotics or anesthesia can happens to some people ,the a pain killer during the whole procedure , so far the pain was control, I had to tell the nurses' not to place the IV in the arm that hurt the most because I have rsd / crps if they don't know what I meant ,I don't let them do it until I explained and get it I the right place .
My four surgery was same process but was for gallbladder stones ,I needed to removed my whole gallbladder due to the abdominal pain I was suffering ,all occasions a long chat with the anesthesiologist was very detailing and they were aware of rsd or at least have some knowledge ,keep in mind rsd can be spread not only for surgeries but also for any other maybe minor reasons non expected but we all want to make sure we are going to be ok, even my dentist have to take extra measures to do at least a regular cleaning ,nothing is like before and sure we are scare and for many paranoid about it but to me ,I don't care what they think,I'm the one with the pain and the last surgery was real painful and I was not going to control that kind of pain with tramadol only, I have the two last surgeries one month apart,so pain was way different but was control by the anesthesiologist , it was the first time for me getting dilaudid a c2 level drug during the surgery and as soon I woke up I called my dr and ask for something stronger than tramadol ,I was for few days I. Tylenol with codeine otherwise won't be able to control that pain.
We had to be paranoid and scare and don't give a s....h about if they think we are getting to extreme we don't know how the body will react, like I mentioned in one past posting ,lately I new about two different lady's getting rsd one from a blood drawn And the second by having a surgery on her arm few months early and the nurse took the blood pressure in that same arm and she gets rsd,so yes happens and can happen to anyone and that's why researches are made and existed .
If they don't get what you are telling them, call your insurance and get a new dr and new medical group,people who do care about your pain,is real,is also true the brains control everything but eve though it happens that way,pain can be spread anywhere without we even noticed ,taking extra measures is ok and will never be too much, peace In your mind is what you need not to keep still worrying about to get worse,is not working,get a second opinion and also a third if needed, you just want to avoid get worse,we all want to get better not worse,so keep insisting ,dr and anesthesiologist will understand if they do care.
Wish you good luck and hope soon you get a better results and don't give up and always demand extra care.
Blessing and gentle hugs with love Jesika .
Hope that helps you a bit.
Ps forgot to mention, for any new procedure you should be actually get general anesthesia the tricky part will be the recovery,in my cases I was following the routine of antibiotic,zofran,ranitidine I did not mentioned ,obviously IV potassium or the IV the dr suggested,and the pain killer as soon as you get in the operating room and after the surgery,general anesthesia will avoid you pain and the pain killer will keep pain away after,also make sure you have enough and stronger pain killer at home or provided new prescription by the surgeon. I normally don't take anything stronger then tramadol ,that's why dilaudid and Tylenol with codeine were add on my last surgery,dilaudid during surgery and recovery area,and Tylenol with codeine couple days at home,but normally my scs,tramadol and meloxicam helps,to manage the pain, but you need to make sure the really understand those steps ,so far I had three different surgeons and they followed same steps,I only asked for the ranitidine for stomach pain and Tylenol w codeine when I realized pain will be an issue for the first time.
Getting the IV connected is also to be care about, nurses many time want to do what they want so make sure you spoke clear with them,other than that I had no issues, and still with pain on my affected injure foot but like I said it won't be getting any surgery until rsd is controlled in extreme cases the dr do surgeries or injections there ,I had two Injections directly in my foot area but he numb the area with an spray and the injection was guide with and ultrasound machine,only bad reaction, rsd makes your skin so sensitive, the sprays burns my skin and that hurt but is because any kind of too cold or to hot items hitting or apply on rsd areas will react because of the skin being really sensible.hope this clarify more,last night I forgot to mentioned .