Welcome and sorry you are having such issues. I hope you find help here and that your docs can support you as best they can.
Hard to tell based on your description if it is RSD or not, but it may help to tell us more about your symptoms (even though we are doctors or diagnosticians) we may be able to say "these are common or potentially common in many people with RSD.." etc.
and yes many people with RSD have a lot of sensitivity to the touch, fabric, even wind (fans or a breeze), sheets, etc. Sensitivity goes hand in hand with RSD for many people.
Did you have surgery or an accident and hurt yourself and it is not healing or it is getting worse? Do you recall when this started getting bad or worse? For me RSD pain is like nothing else in the world or I have ever felt, it is distinct to me, and I have many other serious pain issues but none feel like RSD.
Best to you, hope we can be of a support
Quote:
Originally Posted by asbandr
Hi all. I'm new and haven't officially been diagnosed with rsd though my dr is really leaning towards it. I have never met anyone else with it and while I can look online or talk to my dr and get a vague list of symptoms, I was hoping to hear from others diagnosed. I feel like my main symptom is weird and it makes me feel crazy to try and explain it.
My main issue for the past 2 years is knee sensitivity in my right knee. I can touch it and it feels fine but to rest anything on it like a book or having any fabric, even a sheet over it is miserable. It feels like a lot of pressure with occasional burning or stinging sensations. Anyone else had this?
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