Barbara,

My heart goes out to you. We are not doctors as you know, but if there is one thing I am learning, it's that there are so many possible reactions to environment genetically, that the conditions are multiplying and they just don't know what is wrong. It's like the universe - so many interactions and glitches possible.

That wasn't very helpful; it sounds like you are doing the right thing - just keep searching, but it may take some time.

You're welcome here.
Paula