Barbara, you said, "The head of Neurology says there is clearly something at work, other than the Parkinson, bu they can't find out what."
Would you share where the "head of neurology" is located. Is this doctor in a Movement Disorder center, one that specializes in movement disorders such as PD and MS?
Maybe if you can share this information folks on this board can give you some alternative diagnostic locations to check out.
What were his "off meds" symptoms when he was diagnosed with PD?
What are his symtoms now?
I don't ask these two questions in order to provide diagnostic guidance...I may have had PD for almost two decades, but I am NOT a doctor...but to help us understand and provide the diagnostic location guidance as cited above.
As Paula said, you are very welcome here...ask all the questions you need and want to ask...someone will reply if they can help.