Yeah, weather is my biggest issue now. I am in Ontario, Canada and this past winter was horrible. I went through a rough couple of months and my ATN went bilateral and is causing some symptoms in the top branch, which I never had before. Now the rain or humid, stormy days always bring a flare up.
I wish it would all just go away...It is very frustrating and frightening to deal with this ever-morphing pain right?! I hope that you are able to get yours under control again.
I see the specialist in a month and am not even holding out much hope for the appointment. All I want at this point is somebody who is on board with me and can manage medication for me. Someone that knows even a little about it. You know, I haven't even really received a proper diagnosis I guess. I know that it wasn't caused by injury. Other than that I am on my own with it for now.
Keep me updated on your situation
Quote:
Originally Posted by Vowel Lady
Hi Jane. I take a medication very similar to yours called Desipramine. I asked for it because I heard it causes less weight gain. In addition, I use a compounded cream on the injured side of my face...or where the ATN is (right side). I have a lot of pain in and around my right ear.
I was doing well until very recently. I've had some very bad breakthrough pain and it seems to have spread further across my face...into my nose and cheek, etc. I had a couple of horrid days that I think were caused by terrible weather. And, I have a sinus infection that is actually rather minor, but it set off bad TN pain.
I spoke with the compounding pharmacist this morning. I use three meds in the compounding cream: Gabapentin, Lidocaine and Capsaicin. They normally work very well. But, I might talk with the doctor about adding a small amount of an anti-inflammatory due to the recent breakthrough pain.
Interesting that the weather is bothering you as well. So frustrating that its been so difficult and then there has been so many delays for you to get a specialist. It wasn't easy for me either. Even neuros don't always know about this stuff. Kudos to your family physician for helping you out with a good med.
I've been enjoying your posts. Keep in touch PLEASE. This is AWFUL! 
Wishing you many good days!!!! |