Hi Bny, that is/was part of my reason for asking the question. Because of the nature of this disease, it is impossible to be be sure. I was wondering whether doing exercises, when possible, would help, but I have already lost so much condition, even if the disease was taken away today, I would be considerably weaker than I was 7 months ago. It would take some time to recover that lost strength. But since it is clear that at least some of that loss is permanent, no matter what, we have to accept that.

But further, I think this point should be made clearer to Doctors, because it does add a small level of urgency to the diagnosis process, since as Annie said, "the longer you go undiagnosed and untreated, the higher the chance that more of that destruction that can occur."