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Old 07-17-2014, 09:50 AM
16rhonda 16rhonda is offline
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Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
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Quote:
Originally Posted by stanfordms View Post
I have been dealing with TOS for the last 3 months and have become crippled by it. I can no longer hold my baby boy and I can't work either. I am now researching surgical options as conservative measures including PT, rest, meds and cortisone injections into my elbows have not helped. I am currently considering the following surgeons:

Robert Thompson at Washington University in St. Louis
Dean Donahue at MGH in Boston


Anyone who has been operated on for TOS and has experience with these surgeons or other surgeons...can you please contact me and let me know how your surgery went? Did you have complications? Did you recover from your TOS?

Any advice is deeply appreciated!
Hi
I had sx for 8 yrs bf being dx. So 3 mos. is not long for tos, which is controversial/very hard to dx. My advice would be to take it slow, get has many opinions as u can & Emg/Ncs tests which usually are normal w tos, but u could have compression at the elbow or nerve comp. at c-spine. I had an Ulnar n. release in 2008 and C-5/6 discectomy/fushion in 2011, and a shoulder decompression in 2010. Then I found Bilateral tos w/extra C-Ribs w Dr D. I found in on my own. I was shocked I actually had this problem.
Ill finish later dont want to lose this!
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