Sorry to hear about all of your problems, but personally I wouldn't assume MS from your list of symptoms. That's just my opinion however and the disease can present in a whole host of ways, nothing is really typical.
That being said however, rather than having difficulty voiding a bladder, it is seen more in pts with ms to have difficulty not voiding their bladders. While stiffness can be a symptom it's 'generally' caused by spastic muscles that 'generally' causes weakness, tremors and uncontrolled movements. Eyelids 'tend' to twitch rather than being unable to open. And while fatigue can be a symptom of MS, it is also present in any number of disorders.
So again it's just my opinion, not a doctor and never played one on tv
, but given the list symptoms and time it started, I personally would lean more towards MD (muscular dystrophy) rather than MS. MD like MS doesn't always have 'classic' or 'typical' symptoms. It's 'generally' thought to occur in childhood alone, but there are adults who present symptoms later, it's not as common, but does happen and unfortunately it can be a long time in arriving at the dx after reaching puberty due to this.
It would still be treated by a neuro, along with a host of other doctors, and the MDA has a quick search you can access to find an MDA clinic close to you, giving you all the specialists under one roof so to speak. If you're still leaning towards MS, the national MS Society also has a contact number so you can speak with someone who can not only listen to your concerns, but can help find a neuro in your area that specializes in ms.
I hope all the best for you. And am fighting my own 10 year+ quest for an answer over my body's personal civil war. It's hard, and frustrating, at times worrisome and heart rending, but keep up the fight! The answer is out there somewhere.
(Edit) looking over the variations, I think your dr might have been correct in removing MG from the diagnosis, but you might want to a look at FA and FSH/FSHD sorry I'm not more familiar with the variant forms
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