very true!! There was definitely a lack of urgency with my case in the beginning.. it wasn't until it affected my respiratory muscles pretty badly that the sense of urgency on their part happened.. not fun!

Yes, I'm WAY weaker than I was before this all started over 3 years ago, but WAY stronger than I was 2.75 years ago! I used to work out, run, was toned.. haha now... I have to save my muscle strength for the essentials of work, kids and everyday "chores"..not sure I"ll ever get back to being able to work out again.. I can hope!