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Old 07-19-2014, 12:17 PM
Burnbabyburn Burnbabyburn is offline
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Join Date: May 2014
Posts: 78
10 yr Member
Burnbabyburn Burnbabyburn is offline
Junior Member
 
Join Date: May 2014
Posts: 78
10 yr Member
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Hi there

Sounds like you are doing everything you can to stay on top, work through pain, move, and avoid meds that make you feel badly. It is hard if you have a sensitive body to take these meds. I am in same situation. Many meds make me too sick to take. We all have to find our own balance.

It can be hard to be treated by these doctors if when we go in, the first things they suggest, and many after, are things we can't take or refuse to take. It sets up the stage for a tougher doc/patient relationship. I have lived this. I would consider asking for alternative treatments which mainstream docs may not do and checking out something called: Low Dose Naltrexone. It is not a regular drug like neurontin or lyrica etc, it is something they compound in pharmacy with little to no side effects at all. It has helped some people with RSD.

http://www.rsdhope.org/ldn-or-low-dose-naltrexone.html

I tried it with no results but also ZERO side effects, I mean zero and I am sensitive. Also some people take a lot of Vit C and some take something called NAC, and it can't hurt to take magnesium etc. As for docs taking you seriously, it is hard when you can't take many meds, they have a tough time working with that I have found. If they suggest things, try and stay open minded or approach it with..."I can't take that class of drugs, do you have anything else that might produce less side effects for my system/body.." I want to get well and reduce pain, are their topicals or other things you might suggest...." Etc. Topicals are much less harsh...since we are not ingesting them.

Good good luck and stay positive, it's a great way to approach this.
They do compound pain creams and gels, maybe you can get one with ketamine, lidocaine and things like gabapentin. WHen it is blended in a cream and on the skin, it can help. Without knocking you out!

Quote:
Originally Posted by TheChase View Post
Years ago I tried using essential oils. I could definitely do that again (I still have the recipe book around here, but I know it doesn't have anything RSD specific.) Do you have a particular recipe or blend you use?

I'm starting acupuncture next week too - I did that a while ago, but the clinic I went to closed so this is a new one.

I've tried a lot of the standards, including gabapentin and neurontin, lyrica and cymbalta, tramadol, lidocaine, etc. I was even on vicodin for a while. I'm pretty hypersensitive to sleepy side effects and since starting testosterone in Jan '13, that's gotten way worse. Things just knock me out and I can't go to work that out of it/high, even if it's just a "temporary" side effect. Passing out at work is a big nono.

I've found that boosting my activity to a solid (but not extreme) level works pretty well for me. I have less pain now than when I was activity avoidant. (Back in '11, I started getting more active, for non-health reasons, and realized my pain was positively effected. Even when it flared up, activity did not make it worse as long as I wasn't overdoing it.)
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"Thanks for this!" says:
eevo61 (07-20-2014)