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Originally Posted by Starznight
Granted that's just my understanding, I had a great uncle with PPMS who went from a giant larger than life hero! To a frail shadow of himself in just a few years... Long before they had any treatment to speak of. My aunt by marriage has the SRMS, and my mother was an EMT for a private ambulance that often transported people with MS on a regular basis for dr appt, and such. We didn't see much of the regressive group, but it got fairly easy to tell the SPMS from the PPMS patients, even when both had lost their mobility. The rapidity of decline was too marked. Which might be why your doctor is denying PPMS dx, even if your still creating lesions..
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I'm not sure if I am developing any more lesions since the neuro said he would not repeat the mri of my thoracic spine since there were so many lesions it would be hard to tell if any were new ones. I have to ask about the cervical spine because I think the mri I just had was my first one of cervical area of the spine but I am not sure. But my neuro did say that most PPMS people present with mobility problems first and not sensory problems like I did.
Quote:
Originally Posted by Starznight
And the presence of lesions also doesn't seem to matter as much as how they effect you, again from my understand, my aunt has numerous lesions in her brain and spine but even when she's in regression they don't really 'go away' but they aren't affecting her. Either they aren't in an area to pose a problem for everyday living or her body is capable of creating new pathways for the information to travel through. So yeah, tricky disorder to try and make sense of, and how doctors classify you, it seems largely guess work on their part as well.
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I think my lesions have taken up residence in prime real estate and don't want to leave
