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Old 07-23-2014, 10:43 PM
chloecasey chloecasey is offline
Junior Member
 
Join Date: Jun 2012
Posts: 98
10 yr Member
chloecasey chloecasey is offline
Junior Member
 
Join Date: Jun 2012
Posts: 98
10 yr Member
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Quote:
Originally Posted by Sitke View Post
Hi and thank you so much everyone.

Not looked on the TOS forum but will tonight and thank you for the link to Dr Oz, will also take a look tonight.

Hey Mark, that's the thing, if the EMG is negative it's back to square one, i know you've been suffering a long time.

Today I have the pain in my neck, arm, back etc but not the burning I had yesterday, that was beyond awful.

I'm with you, this is definitely from a brain injury, I know you have that "shaking" when you wake up, for me it's when I'm falling asleep, there has to be a connection here.

Am seeing a physiatrist so will ask but nobody so far is certain about what's going on, for sure will let you know if I get some answers.

Yesterday, both legs, arms, hands and tops of feet were burning.

Sitke

Like markneil1212, I am on Gababetin (Neurontin) & after slowly "uping" the dosage over the last 3 weeks per the Doctors prescription I am at 2400mg. I take it at night ... my symptoms were much worse when I would lay down to go to sleep & I would wake up many times throughout the night in bad nerve pain, now sleep through the night like a baby! ......still wake up in pain and worn out like symptoms especially when I have had an over active day or stress. As an example, yesterday I went for my EMG, I had not previously driven myself to my last appt. (husband had) so I did not allow for time it took me to get lost!! and ultimately find my way to their office, needless to say besides being embarressed, was VERY stressed out!!.....well this morning my body told me what stress does to chronic pain!! & how it will last throughout the day!!

Definitely find a Rheumatologist who is knowledgeable in Fibro as that is who typically evaluates & treats Fibro.

chloecasey
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"Thanks for this!" says:
anon1028 (07-23-2014), Sitke (07-29-2014)