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Old 07-26-2014, 08:21 AM
Debbie D's Avatar
Debbie D Debbie D is offline
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Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
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Welcome to that wonderful journey of diagnosis...a long, frustrating trail...

keep a symptom journal of dates of onset and diminishment...also a list of questions for when you see your doc.

most importantly, live your life! Eat well, exercise when you can (even if it's a walk around the block), and try to find something to be grateful for each day. Many of us (me included) become obsessed with what is going on, which is understandable!! But then we miss out on what opportunities each day brings for joy.

Easy for me to say, after being dxd after several years of being told it's fibro, no it's migraines (never had one)...finally getting a dx of "benign MS" (uh, right...). I have been told by my neuro to quit counting on my fingers all of my sxs. He's right! I deal with them as they intrude upon my day; but I no longer think about it with each breath (unless I have the hug).

Just keep an eye on the sxs, but go on with your life. You will get an answer. Your MRI is a base line for later MRIs to compare and contrast whether or not there is progression on some level. Make sure you have a neuro that takes the team approach; mine tells me that loved ones as well as and his nurses are my team, supporting me, watching me, and cheering me on. I love that-he is not an autocrat, but a kind, knowledgable doctor.

Keep us up to date, and check in for info, support, hugs and some laughs. It's a great group here, and they have helped me tremendously on my journey.
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