Hi singlemomstrong,
Welcome to the NeuroTalk Support Groups and I'm sorry you're dealing with such a painful condition.
Unfortunately, I can't really help you with your concerns, but I hope that someone will see your message here soon and that they can give you some information and support.
Try doing a
Full Forum Search
There are some older posts.
See if this works...
http://neurotalk.psychcentral.com/se...ery=Geniculate