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Senior Member
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
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Senior Member
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
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Hi and welcome to NeuroTalk!
If the tilt table was positive then they may order a 24 hour BP monitor and/or 24-48 hr holter monitor to see how you heart and BP are doing.
Further testing really all depends on what symptoms you have. If you have heart racing or lightheadedness when standing, then the above testing may be done. Then again though, if the tilt table and QSART were positive, WHY are they not treating you based upon those findings?
If you have any GI related problems (nausea, fullness after eating just a little, pain, etc) then they may also order a gastric empty test to check your GI motility.
Once they determine you have dysautonomia (which they apparently already have done), then testing to find out why you have it will be next as well. Those types of testing will include checking for diabetes (even pre-diabetes), autoimmune disorders, and other types of peripheral neuropathy (using EMG & NCS testing and skin biopsy).
Finding the cause can be difficult and sometimes they never find it and therefore label it idiopathic. But many aspects of the dysautonomia can be treated (heart related aspects, & GI). Other symptoms (temperature regulation, balance, etc) are just a matter of lifestyle changes.
If you can provide a little more information about your symptoms, we might be able to provide you more information.
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