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Old 07-28-2014, 05:02 PM
davew41 davew41 is offline
Junior Member
 
Join Date: Sep 2013
Posts: 63
10 yr Member
davew41 davew41 is offline
Junior Member
 
Join Date: Sep 2013
Posts: 63
10 yr Member
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Quote:
Originally Posted by limpy View Post
Is your Cellcept in liquid form? I take caplets, 500 mg twice a day. Hoping with that and the plasmapheresis, I will get more strength back.
How much Dap do you take?
I can't take prednisone. Makes all my symptoms worse.
Yes I am on liquid
which is 200mg per ml , so tomorrow I'll start 1ml 2x per day which would equal
400mg total per day.
they want to start me slow an see how I do on it and adjust me up every few weeks.
I will never do that plasmapheresis.


I hated the ivig for over a year and it did nothing for me at all, but the neuro i HAD at the time kept telling me i had to go and kept ordering it..
I got a REAL neuro now Down at hershey medical center and it is night and day..
Hershey also has access to the 3,4 Dap


dap schedule is 100mg ( they told me this is the max per day)

6 am 20mg with mestinon liquid 10ml = 2tsp
930 am 15mg with mestinon liquid 10ml = 2tsp
1pm 20mg with mestinon liquid 10ml = 2tsp
430pm 15mg with mestinon liquid 10ml = 2tsp
8pm 15mg with mestinon liquid 10ml = 2tsp
1130pm 15 mg ( i added this one as i was having trouble breathing at night) no mestinon as max dose was reached at he 8pm mark

I was on 20 mg 5X a day but that was leaving me at the 8pm dose and it was hell to breathe at nigh by midnght
so we stretched the dap out and brought some doses down as above to 15mg so i can get that extra time slot in, to breathe at night
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