Hi Summer,

Sometimes diagnosis can be so exasperating. The wheels turn so slowly. We understand. Below is some advice I share with anyone going through the diagnosis routines.

Be patient. Begin a wrritten, personal log or diary of your symptoms, your doctors' visits, (with dates, doc's name, address and phone number) all in-office exams, tests and their results and all prescriptions In writing.

Obtain and keep all other test results, blood, urologist's visits and tests, LP's, EVP's, MRI films and the film's written report because you'll need them in the future, no matter what your dx is. I guarantee it. And the physicians must, by law - HIPPA - provide them to you, if you ask. Ask.

Like so many others, I've been through it myself, much of it 20 years ago at my own PPMS diagnosis.

If you have questions, this is a good place for answers, opinions, and recommendations.