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Member
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Join Date: Sep 2006
Location: Nottinghamshire/UK; dx 09/97 @ 38
Posts: 353
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Member
Join Date: Sep 2006
Location: Nottinghamshire/UK; dx 09/97 @ 38
Posts: 353
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Birte !!! Xxx
GREAT to see you back.Have missed you.
Thanks to both you and Chasmo for your responses. By the way,my 2nd example was fictitional..my hujbby didn`t say that to me.[Just had to make that clear...doh]
Another confusing scenario can arise in the change from spontaneity ..to we PD ers having to plan a little more.This may not always be the situation but personally,I know that somedays I don`t stand a hope in hell of just "springing into acton" at a request to "go shopping" or "going out for an evening"
This one is tough on our partners because yes...to a degree the drudge of planning might negate the fun of the outing.
So...if the response to a suggestion like the above exacts a response from your PD `er such as;
" Can`t we go another day"
or
"How long will we be?"
or even silence
then it probably means;
"I would love to but I need to know if there are loos there..."
"I have to think about my next medication time"
"I don`t want to be "off" in the middle of town"
and the silence could just be us silently planning if we have the stamina
to cope.
I know that I have made excuses galore in the past when asked if I want to go to a concert,or see a film.
My first thought is "how long will it last" as I know for certain I couldn`t sit or stand through a 3 hour concert with ease.
I now politely refuse and explain that my condition would not be conducive to such an event if the length of the entertainment is going to be a problem.
It is kinder to our carers to be upfront...not saying that many of you aren`t but I know that for years I invented excuses which didn`t ever ring true.
It is also confusing when we are suddenly "off" and "on".
One minute capable,the next comatose.
What is THAT all about?
Well...quite simply it`s about Parkinsons disease. Period .
I have been in a situation where one minute I am swinging hedgecutters as if they are made of air..the next minute I can`t lift a knife to butter bread.
So so frustrating .But sadly so true of this illness.
Steff
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