Hi Tigeress,

I don't know what's going on with you, this is far outside my experience. But.. How would you characterize communication with your doctor? To me pills are not a diagnosis, they are a way to say go away, is he really listening to your story? One of the questions I ask when leaving an appt for a problem is to cover how long I should give treatment/time/whatever before calling back if no improvement (I like to know why there are certain wait times, sometimes I've already waited the right amount or more so they need to move to next step asap). I always mention I will call immediately if things get worse (wash, rinse, repeat). I am also up front with asking if there needs to be a referral to someone else, etc. With symptoms like yours, the doctor should be hearing from you a lot, because you most likely can't address the problem until they figure it out.

hope you find the answer!