I am also in limbo and also just joined here ... have had binocular double vision since April which earned me a trip to a neuro opthamologist.

But each eye individually is fine. I guess that is why I was referred quickly?

IN order to see, I have to cover one eye. I now have temporary prisms in two sets of glasses to help me see the computer, or to read.

Summer, I kept my notes in journal style, but my dx process has been going on forever. (Yes, I am exaggerating! -- just feels like forever) Eventually I summarized my history on a timeline, which I took to my last neurologist appointment. My neuro loved it and actually wrote all his notes on it.

Not everything was on it. My "everything" makes my neuro's eyes glaze over and reduces him to a catatonic state . It helped him see that although I have a lot going on, there are definite periods of relapse and remission for individual symptoms. They do sometimes overlap.

Just an idea as you keep your notes .

Have you had bloodwork done? I was low in vitamin D and magnesium -- since I started supplementing magnesium in particular I've had much less trouble with the cramping in my feet and toes, and hardly any cramping in my calves. These would be good tests to do.

I also have periods of time where it is difficult to speak; also word-finding, etc.

This process is long, and I'm happy you've found a place to go to for support. No one in real life gets it .