Quote:
Originally Posted by bchristman
HI, I'm Brandy, I'm 28 and I have had RSD since I was 14. I am a single Mom (father not in pic at all), my son is 10 and in the last couple years he has had to grow up real quick. My disease went into remission some years ago, it came back full force in 2012. It started in my right leg and now has moved up my hips and into my left leg now. I have to use assistance when walking now. My son is not ashamed to carry my camo pink purse for me  Anyways, I was supposed to start Ketamine treatments last month, than last week, than next week, now I got a call today postponing it once again until September. I have had to wing off my pain meds for this treatment, does anyone know what I can do to relieve some pain?? Any suggestions would help, I have tried everything I can think of and still no relief.
Thanks, and I look forward to getting to know people who suffer with the same thing. I know it's not a good thing but it did make me feel better when I saw this and realized I am not the only one who suffers from RSD. |
Sorry you rsd came back so strong , hope soon you find a way to regain control back.
I'm so happy your son is such amazing young men,sure you are so proud mama.
My relief when flare ups are ,heating pads In the most affected areas,rest when possible,take my meds, cry if I have to ,gelato to refresh my belly , light and soft music Tibetan singing bowls to meditate and relax a little, but most important , always try to no fight a bad day,let it pass the only really good advise from my old pm dr.when you fight a bad day the pain gets back at you stronger then ever, sucks for sure.
I hope soon you found some much needed relief and also pamper yourself with something you like and distracted your mind from the pain,is almost impossible but do your best,
Happy you are here and we can in some way give you some source of support and comfort,wish you better days and sending you gentle hugs with love Jesika .
