Hi
Wanted to say hello, you are not alone, and I will pray you get some help and support soon.
How is your neuro doc helping you? Are you on whatever meds you can take and trying different things while waiting for more opportunities and help? I am sending light and hope for the moment because my thoughts are a little scattered and I am hoping someone who is thinking more clearly can come in and reply with something useful for you!!
Did you consider going to the emergency room for pain management...just to try and get your situation calmed down enough so you can think, breathe?
Hang in there.
Quote:
Originally Posted by Firedancer79
I've been recently diagnosed with Crps and this has been going on five years.
I've had a double fusion back surgery a few years back and the pain is in my back, both legs and feet. The pain is unbelievable. It's unthinkable, the stuff nightmares are made of...
I tried the spinal cord stimulator and it made the pain worse and spread and was later removed. I have a pain dr but he doesn't really treat crps, apparently. 
So, I was referred to a pain specialist in Indianapolis, Indiana, close to where I reside for a pain pump. I got in to see this guy and he agrees it could be a good option. Says to do psych eval, and to call to schedule surgery. I called to schedule the day after the psych eval. Days go by... I leave an urgent message. No returned call. No live people answer the phone, EVER. It has been over a month and still have no call. They won't even return my neurologists phone call. 
So, I don't even want to see this guy again. I need a pain dr, one who can medically manage my pain. I'm in agony, I can barely walk to the toilet. It is really bad. I'm getting really scared my situation is hopeless. 
I can't go on like this much longer, I'm getting weaker and weaker.
Anyone have any suggestions? I'm in indiana. I need this brought under better control so I can at least walk, and then start PT. pain management palliative care ??? OMG what do I do now??? |