Originally Posted by Firedancer79

I've been recently diagnosed with Crps and this has been going on five years.
I've had a double fusion back surgery a few years back and the pain is in my back, both legs and feet. The pain is unbelievable. It's unthinkable, the stuff nightmares are made of...
I tried the spinal cord stimulator and it made the pain worse and spread and was later removed. I have a pain dr but he doesn't really treat crps, apparently.

So, I was referred to a pain specialist in Indianapolis, Indiana, close to where I reside for a pain pump. I got in to see this guy and he agrees it could be a good option. Says to do psych eval, and to call to schedule surgery. I called to schedule the day after the psych eval. Days go by... I leave an urgent message. No returned call. No live people answer the phone, EVER. It has been over a month and still have no call. They won't even return my neurologists phone call.

So, I don't even want to see this guy again. I need a pain dr, one who can medically manage my pain. I'm in agony, I can barely walk to the toilet. It is really bad. I'm getting really scared my situation is hopeless.
I can't go on like this much longer, I'm getting weaker and weaker.

Anyone have any suggestions? I'm in indiana. I need this brought under better control so I can at least walk, and then start PT. pain management palliative care ??? OMG what do I do now???