Thread: Surgeries
View Single Post
Old 08-01-2014, 08:22 PM
Zatochi's Avatar
Zatochi Zatochi is offline
Junior Member
 
Join Date: Nov 2011
Location: Louisiana
Posts: 57
10 yr Member
Zatochi Zatochi is offline
Junior Member
Zatochi's Avatar
 
Join Date: Nov 2011
Location: Louisiana
Posts: 57
10 yr Member
Default

Quote:
Originally Posted by DonnaRose View Post
I had the MVD surgery done 16 days ago. I was so excited when the doctor told me I could cut back my meds and be done with them in a week. After I cut them out completely the pains started coming back. Yesterday I got back on a small dose of the lamotrigine I was taking. Today my pain has been absent so far. I know I have to be patient because I have a lot of healing to been done. I am just so anxious to get off meds all together. My doctor is one of the best in the country for 2013-14. The University of Iowa Neurosurgery dept. is one of the top in the country. I'm praying and semi-confident my pain will be gone within 8 weeks. You are right Ken, if this works it will all be worth it. If it doesn't work I'll cross that bridge when I come to it. I need prayers that the pain will be gone and the surgery be a success. I will get back to everyone when I know.
I am always surprised there are so many out there that have no idea what this disease does to you. With no visible symptoms a lot of people don't understand how it really feels.
I wouldn't wish it on my worst enemy.
Donna, do not get discouraged because you had to start back on a small dose of medication. About 3 months ago I started having what I call small twinges in my right jaw. Same side my TN was on. They are not very painful but my anxiety level goes through the roof when I have one. I'm thinking oh s**t my TN is coming back. I got back on 400mg of Tegretol a day and now they are gone. I came to the realization that I will probably be on this med for the rest of my life but if this is the worst it gets....I can live with it. I'm still 100% better than I was before I had the MVD surgery.

Keep us updated on how you are coming along...

Ken
Zatochi is offline   Reply With QuoteReply With Quote