Quote:
Originally Posted by Firedancer79
I really appreciate all of your kind replies, thoughts, and prayers. I believe nothing is by chance, and everyone who comes into our lives belong for a special purpose. I'm sad we've all crossed paths due to a condition like this, but I'm glad to have some people who actually know what I'm going through. 
I do meditate daily, and have a beautiful and energetic young little girl, who keeps me grounded. However, I feel like I have to be strong for my daughter, and for my family, as I think it scares them more than myself sometimes. Well, I'm suffering really bad and I sometimes wish I could just be selfish and have someone to be strong for me! I don't have that in my life. My husband left me a year after I got sick, most of my friends ran away, and even my doctors seem bewildered by me. Sigh, does any of this make sense? I feel like I'm rambling.
Yes, I am on quite a bit of medication, wish I thank my lucky stars I have at this point, because it literally saved my life. Story for another time. But, it only helps a bit, and I'm still suffering a 9/10. I haven't had any med changed in over a year. So, I feel like maybe that could help but nobody is willing. Frustrating!
Thanks again. I do hope this finds everyone doing ok today. It means a lot to me that you all took time to respond, knowing how much you are all suffering. Plus, energy doesn't come easily to us, so thanks. |
Even the greatest warriors lose a fight once in their lives.
If someone left you ,means that person wasn't the right for you, there always a purpose for everything ,now you need to focus and the much you need to regain about yourself.
Destiny place the right people at the right time,soon will be the right time ,for now ,rsd became to be your partner and you are not selfish,we are suffering too much and sure we can't only do so much,but selfish,we are not selfish. I always wonder who will ever step on our shoes just to try how long they can last and I bet no one will ever try at all.
Be you own person,be your best friend and love yourself by not allowing anyone hurt you because you are sick ,those who decide to leave are the weakest persons you will ever meet, only a true and honest soul will stay at your side,don't regret anything that happened good or bad, you overcome that's what matter.
Here is a huge and friendly community, left few moths ago for a misunderstanding , I realized lately it wasn't a big deal and the person who created the situation is not even here any more. Disappointment is everywhere but is up to us to make a difference in our life's and be a new advocate for rsd and help others,that's the best way to live our life's,offering support and be a source of comfort.
I'm also and rsd patient ,type 2 or label 2 now,but I still see days with a shinny sunny day and many others I can't even see outside my windows but I believe someone needs me and I get here or there, I'm a people person,my job was everything for me and I lost it due to my rsd but still hurts and I try to start all over again, I think I don't deserve this but it what it is.
Gentle hugs and always be hopeful and see the bright side ,there is always one,take care ,with love Jesika .
